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Post by Tasha on Apr 11, 2015 12:04:00 GMT -5
My two year old grandson has saggital Synostosis. Diagnosed late February of this year. Had an MRI in February. He was supposed to have surgery April 6 but had a runny nose. The surgeons said they don't need another MRI to make sure his brain has enough room until surgery June 15. Is that normal? Do all surgeons just wait til the baby has seizures or begins to have complications? Also, my grandson (Silas) is normally not afraid of climbing and jumping. But lately he is petrified of any fast movement. Is this something to be concerned about? Thank you!
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Post by got2beme247 on May 3, 2015 20:00:57 GMT -5
I'm not sure if it's normal but my son is scheduled for surgery on 6/15 n the Dr's didn't need to do Mri 2 know he needs surgery they can tell by shape n feel. He is still getting a ct scan n what not.
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Post by New Cranio Mom on Aug 8, 2015 21:27:20 GMT -5
Hope surgery went well.
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