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Post by gracelet on May 16, 2014 17:01:57 GMT -5
Has anyone here been to Boston Children's Hospital for craniosynostosis treatment? What was your experience? We're meeting Dr. Meara on Monday, May 19th and we'll be bringing our daughter's x-rays, CT scan and the notes from the neurosurgeon whose practice is near our house. Our daughter will be 6.5 months old on the 19th and she was diagnosed a month ago.
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Post by natalie1995 on Jul 7, 2014 19:53:46 GMT -5
Gracelet,
I am 18 with pfeiffer/Jackson Weiss syndrome and have been seen at BCH my whole life. They are truly great! They've saved my life time and time again, as my case is a bit more complicated than just cranio. I hope you've been happy with them thus far. Feel free to reach out to me with any and all questions!
~Natali
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Post by Admin on Jul 8, 2014 7:24:46 GMT -5
Hi there. The team at Boston Children's is amazing! Good luck.
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