Sagittal Craniosynostosis in Older Baby

[gracelet]

Our daughter was diagnosed at 5.5 months old and is now 6.5 months old.  So from what I've read, it looks like we missed the endoscopic window even before she had a diagnosis.  Does anyone else have a child who was diagnosed after the endoscopic window?  What did treatment look like for you?

Thanks!

[M. Meechin]

Our daughter was diagnosed at 6 mo. We had surgery just prior to her 8 mo. mark at the Florida Hospital for Children. Our daughter has Cranial Vault Reconstruction (CVR) during a 7 hour procedure. During the procedure it was discovered that she was actually suffering from sagittal and metopic craniosynostosis.